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Spitting Into the Wind

Hit by lightning.  Again.  I feel like the frail off-screen distant relative of some major TV character.  You know the one.  Every weekly episode has a new throw-away one-liner.  “You remember Elaine —  Maude’s uncle’s wife’s cousin?  She just had her gall bladder removed.”  “She just got hit by a car.” “An albatross knocked her over on its yearly migration and broke her arm.” “She just died from an infected hangnail.”  “She just died again when she got hit by a zero-gravity toilet seat that re-entered Earth’s gravity after the ISS fell out of orbit.”  (Sorry, that last one was ripped off from “Dead Like Me,” which was a vastly under-rated series if you never got to see it.)

On the plus side, I now know why I lost my original liver eighteen years ago.  OK, technically it wasn’t lost so much as thrown away.  Anyhow.  I now know why I’ve had neuresthesia in my hands and feet for decades.  I know why I get ocular migraines now.  The reason why I perpetually itch, and why it gets worse after a shower is now explained.  I may even finally have an explanation as to the tinnitus and the macular degeneration.  It all boils down to a another rare-ish condition called Polycythemia Vera.Collapse )

I’m still waiting for genetic marker testing to come back, but the disease is usually caused by a gene that zigged when it should have zagged and isn’t usually a hereditary condition.  It’s usually diagnosed in people in their 60’s, but frankly I think that’s because it’s a missed diagnosis until it gets completely out of hand.  But I’ll skip the editorializing for the moment.  The Reader’s Digest version is that my marrow has joined the Type-A Overachievers’ Club and is overproducing red blood cells and platelets at a rate comparable to that of the conveyer belt in the episode where Lucy and Ethel are working in a chocolate factory. 

<iframe width=”560″ height=”315″ src=”https://www.youtube.com/embed/K3axU2b0dDk” title=”YouTube video player” frameborder=”0″ allow=”accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture” allowfullscreen></iframe> (OK, seriously. I put all the work into the html and THIS is what I get for my trouble? Jeez.)

Normal human female hematocrit is around 43.  Five days ago mine was 62.  They did a red blood cell reduction procedure on my yesterday and knocked it down to 51.  I’ll probably be called back for another reduction procedure early next week.  

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2 Comments

  1. Well, that’s a fine kettle of fish.

    Will this treatment be helpful for some of your symptoms???

    Oh yeah. Dead Like Me. It’s a real gem. One of my favorites.

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